There are three four-letter words: pity, care, love. Which one is completely unacceptable? Of course, it’s pity, and unfortunately it creeps into the basis of far too many so-called support programmes for people with dementia … just like programmes for people with other disabling conditions.
Frequently, the most difficult time for people with dementia are the hours and days immediately following their assessment. This is when they first have to grapple with the fears, stigma and bias associated with dementia. Unfortunately, if they can’t get past this, they’ll never be able to move on to a new life when they can live well with a better understanding and acceptance of themselves.
Jule Briese and husband Wayne from Qualicum Beach, B.C. are working their way through dementia. Like everyone, their way is unique. Their story is told in the following. Try their book – it’s good for you and good for anyone willing to share your progress.
Sooke woman wants House of Commons to debate allowing MAID for people with Alzheimer’s disease
WATCH: A Sooke woman is petitioning the federal government to allow people diagnosed with Alzheimer’s disease to give advanced consent for a medically-assisted death. She began her fight after watching her mom, a vibrant artist, battle the disease. Luisa Alvarez has the story. (click picture)
So many wanting access to Medical Assistance in Dying. So many “not vulnerable;” so many not crying “for protection;” so many “wanting their rights;” and so many wanting MAID corrected and their Advance Request(AR) respected and honoured.
Thank you Dana and all those who responded. This is a big step forward!
Everyone asks this question of themselves, their parents, friends, spouse … anyone who’s close enough to care. Sometimes it’s frivolous; sometimes it’s speculative; and, sometimes it’s just plain, absolutely necessary. For people with dementia – like everyone – it can be all those things and … painful, sad, and unavoidable.
“A London, Ont. man in the early stages of dementia wants the right to end his life with medical assistance when his condition gets worse. But current laws make no provision for advanced requests – effectively excluding people with Alzheimer’s and dementia.”
WARNING: THE FOLLOWING COMMENTS ABOUT MEDICAL ASSISTANCE IN DYING(MAID) MAY BE OFFENSIVE TO SOME. MY INTENTION IS NOT TO OFFEND, BUT TO INFORM THOSE WHO CHOOSE TO BECOME INFORMED.
The most compelling health legislation in this country – the Canada Health Act – was offered to Canadians in 1967. Highly regarded and anticipated by many and feared by others, MAID was offered to some Canadians in June, 2016 after direction from the Supreme Court of Canada a year and a half earlier. Unfortunately, MAID is a failure in design: it deliberately excludes many Canadians undertaking a grievous and hurtful existence leading to death – including all of us facing a future with dementia – from even consideration of MAID.
A wonderful documentary called The Eight Conditions, which was produced by Alisa Siegel of CBC Radio, aired on Michael Enright’s show, The Sunday Edition, on September 30, 2018. The documentary, which you can listen to here, is based on my personal quest for an assisted death when I am no longer capable of making such decisions for myself. You can also find a link to the documentary and other relevant information on Dying With Dignity Canada’s website.