REVISIONS TO MAID

On January 13, the Minister of Justice, David Lametti announced the beginning of a review to revise MAID.   It’s really in two parts – the first is a questionnaire to be included with the study of the  Should be  Should be Quebec Superior Court’s Ruling (Gladu and Truchon – September 2019).   The Prime Minister has already announced the Federal Government will not appeal the Quebec Court’s decision and will look at ways to remove ‘other restrictions.’   The second part will begin in June and anything can happen.   The study will encompass the Canadian College of Academies(CCA) report of last December.   CCA had been commissioned to present problems(no suggestions nor solutions) respecting MAID’s exclusion of minors(under 18), those with mental health problems, and people with dementia. 

I don’t expect a quick review (I may not live long enough).
As you might expect, I have prepared my recommendations based upon the need for MAID to be simpler, more caring, and administered with the dignity and privacy it deserves.   My submission follows.

World of Wonder? (WOW)

Does that mean “world of wonder?”

So many things coming together at the same time and we seemingly have the right politicians coming to the field at the right time to provide leadership (now that’s a world of wonder).   We have the Truchon & Gladu case from Quebec and the wonderful promise of the Prime Minister “to not appeal .. and study the legislation to remove other restrictive practices.”

The door is opening.   Take a look:

https://www.dyingwithdignity.ca/quebec_plans_advance_requests

https://www.cbc.ca/news/canada/montreal/medical-assistance-in-death-report-1.5377890

https://www.theglobeandmail.com/canada/article-from-dementia-to-medically-assisted-death-a-canadian-womans-journey

In spite of my optimism, I realize it’s not a straight course.   There are gaps.   Look at this news piece from CTV on December 8, 2019…

https://www.ctvnews.ca/video?clipId=1849846&jwsource=cl

Obviously, we have a way to go .. but you and I can play a role in this evolution of Canadian medical history.   Here’s what I wrote .. and I’m going to write more to every MP and MPP for whom I can find an email address.   Please join in and help “kick the ball” down the field.   The goal posts are wide open.

Good News – August 1, 2019

Really good news, the Alzheimer’s Society for Canada(ASC) is revising its policy regarding MAID.   Pending ratification by the Board of Directors in September, the ASC will post its new policy on their website.   Now we can move forward with programmes that truly provide a “Beacon of Hope” for many people living with dementia.   And now, more importantly, we can actively support Dying With Dignity Canada(DWDC) in its attempts to rectify the shortfalls of MAID.   See the ASC’s stated intention as of August 1, 2019.

GET REAL ..

Frequently, the most difficult time for people with dementia are the hours and days immediately following their assessment.   This is when they first have to grapple with the fears, stigma and bias associated with dementia.   Unfortunately, if they can’t get past this, they’ll never be able to move on to a new life when they can live well with a better understanding and acceptance of themselves.

In my workshops I call this .. Get Real.

Here are two papers which I offer for reading and discussion.   The first is entitled, “I’m Not Vulnerable.”   The second is, “ Please No Pity.”

Your Turn: Do Something

Sooke woman wants House of Commons to debate allowing MAID for people with Alzheimer’s disease

WATCH: A Sooke woman is petitioning the federal government to allow people diagnosed with Alzheimer’s disease to give advanced consent for a medically-assisted death. She began her fight after watching her mom, a vibrant artist, battle the disease. Luisa Alvarez has the story. (click picture)

This is just in…   February 1, 2019

Dana has won a big one for all of us.   The petition closed on January 30.   The results can be read at .. Petition e-1854 – E-petitions.

So many wanting access to Medical Assistance in Dying.   So many “not vulnerable;” so many not crying “for protection;”   so many “wanting their rights;” and so many wanting MAID corrected and their Advance Request(AR) respected and honoured.

Thank you Dana and all those who responded.   This is a big step forward!

What If … ?

Written by Ron Posno – a person with dementia

Everyone asks this question of themselves, their parents, friends, spouse … anyone who’s close enough to care.   Sometimes it’s frivolous;   sometimes it’s speculative;   and, sometimes it’s just plain, absolutely necessary.   For people with dementia – like everyone – it can be all those things and … painful, sad, and unavoidable.

Continue reading What If … ?