University can be hard. It’s even harder when you’re 81 and have Alzheimer’s

And just to illustrate that there is life after a diagnosis of dementia, here’s a friend of mine – Ron Robert – who at the age of 80 years took on the challenges of a university degree.   From grade ten years ago, he’s now an A+ student.   He’s also studied his own life and he doesn’t want to be “warehoused”:   he wants MAID.   Check his story …https://www.thestar.com/news/insight/2019/04/17/university-can-be-hard-its-even-harder-when-youre-81-and-have-alzheimers.html

For people with dementia, a fight for the right to die

Just this month (May 3), Maclean’s magazine posted a story on MAID by Shannon Proudfoot – a frequent contributor of articles featuring common problems of MAID and people with dementia.   You can check some of the current issues right here.

https://www.macleans.ca/society/for-people-with-dementia-a-fight-for-the-right-to-die/  

“Dad’s Done It”

People living with dementia are currently being denied their “Rights” as Canadians by not allowing access to MAID.   Here’s a story about Gus who died without the hope and chances MAID could have provided. 

Gus is not alone.   There are many people with dementia who could possibly benefit from having the opportunity to choose MAID.   They don’t have to choose – that’s very much a personal decision – but for many, MAID will provide a beacon of hope and the security of mind that comes from not having to endure the typical end-of-life issues that come with dementia.

Continue reading “Dad’s Done It”

Glenda’s story .. Bartosh: Assisted-dying law needs to change to allow advance directives | Vancouver Sun

Here we go again .. Glenda Bartosh, a strong supporter of the needs of people with dementia, just had her article published in the Vancouver Sun. I hope the Alzheimer Society for Canada is watching. David Lametti is in for a big one.

People with dementia want access to MAID.

Check Glenda’s story .. Bartosh: Assisted-dying law needs to change to allow advance directives | Vancouver Sun

Where Are We Now? (Feb 2019)

Let’s Keep Sue Rodriguez’s Fight Alive

Here on the 25thanniversary of the death of Sue Rodrigues and just past the hallmark death of Audrey Parker, we sit with MAID – which in spite of the Supreme Court’s direction(Carter, 2015) – was deliberately designed to deny Canadian Rights for people with dementia.   And to the bitter irony of all that has transpired to date, neither Sue Rodrigues nor Lee Carter would qualify for MAID today.

Svend Robinson ably supported Sue throughout her ordeal and reminds us all of her struggles in an article published in the Globe and Mail on 9 February, 2019.

On the 25th anniversary of her death, let’s keep Sue Rodriguez’s fight alive

– Globe and Mail, Feb 9, 2019

Dying with Dignity Leadership Renews Appeal for MAID

Dying With Dignity Canada(DWDC) as also renewed its appeal for MAID revision based upon the sacrifices of Audrey Parker.   Carefully read Dr. David Amies blog from the DWDC website.   He’s very clear and definitive:   MAID must be changed.   And then, sign the petition.   Remember Dana Livingstone’s petition from BC (on this website).   She collected more than 2600 signees from across Canada.  Just think what could happen when both petitions get the Ministers of Justice and Health.

There are two Canadian writers of some note:

Sandra Martin has written extensively on the subject.   Three years ago, she penned an extensive referral base entitled “A Good Death” and in January she contributed the following column to the Globe and Mail.

Shannon Proudfoot came to my attention with a wonderful story about “Jo” published in Maclean’s (Sept. 18/2018).   In addition to “Jo,” she embedded several reference to previous works.   All are excellent and do much to inform and encourage us all to search and to create solutions for the many of us afflicted with dementia.   Try this:

www.macleans.ca/news/canada/i-am-mine-this-is-what-alzheimers-is-like-at-41

MAID – Failure By Design

WARNING:   THE AUTHOR IS GOING TO DISCUSS ASSISTED SUICIDE 

                IN TERMS THAT SOME MAY FIND OFFENSIVE.

BACKGROUND:*   Some key points of the Carter vs Canada  Decision of February 6, 2015 by the Supreme Court of Canada are:

…  In striking down the old law respecting assisted suicide, the justices clearly explained why the ban contravenes our Charter of Rights and Freedoms. The prohibition, the court wrote, forces patients to endure intolerable suffering against their wishes and denies them autonomy over their bodies.

I’M NOT VULNERABLE!


BY DR. RON POSNO – A PERSON WITH DEMENTIA

 – 01.01.2019 –

The right to choose an assisted death was deemed a Canadian Right under the Charter of Rights and Freedoms  by the Supreme Court of Canada (Carter, February, 2015).   In June, 2016, the Federal Legislature created MAID – laws specifying the use of Medical Assistance in Dying in such a manner as to effectively deny persons with dementia access to their right because …the lawmakers wanted “to protect the vulnerable.”

I am not vulnerable!

Continue reading I’M NOT VULNERABLE!

PLEASE: DON’T PITY ME

BY RON POSNO

05/01/2019

There are three four-letter words:   pity, care, love.   Which one is completely unacceptable?   Of course, it’s pity, and unfortunately it creeps into the basis of far too many so-called support programmes for people with dementia … just like programmes for people with other disabling conditions.

Continue reading PLEASE: DON’T PITY ME

GET REAL ..

Frequently, the most difficult time for people with dementia are the hours and days immediately following their assessment.   This is when they first have to grapple with the fears, stigma and bias associated with dementia.   Unfortunately, if they can’t get past this, they’ll never be able to move on to a new life when they can live well with a better understanding and acceptance of themselves.

In my workshops I call this .. Get Real.

Here are two papers which I offer for reading and discussion.   The first is entitled, “I’m Not Vulnerable.”   The second is, “ Please No Pity.”

THE HOT CHOCOLATE AND DECADENT CAKE SOCIETY

Jule Briese and husband Wayne from Qualicum Beach, B.C. are working their way through dementia.   Like everyone, their way is unique.   Their story is told in the following.   Try their book – it’s good for you and good for anyone willing to share your progress.

Click the picture to read the article

Your Turn: Do Something

Sooke woman wants House of Commons to debate allowing MAID for people with Alzheimer’s disease

WATCH: A Sooke woman is petitioning the federal government to allow people diagnosed with Alzheimer’s disease to give advanced consent for a medically-assisted death. She began her fight after watching her mom, a vibrant artist, battle the disease. Luisa Alvarez has the story. (click picture)

This is just in…   February 1, 2019

Dana has won a big one for all of us.   The petition closed on January 30.   The results can be read at .. Petition e-1854 – E-petitions.

So many wanting access to Medical Assistance in Dying.   So many “not vulnerable;” so many not crying “for protection;”   so many “wanting their rights;” and so many wanting MAID corrected and their Advance Request(AR) respected and honoured.

Thank you Dana and all those who responded.   This is a big step forward!

What If … ?

Written by Ron Posno – a person with dementia

Everyone asks this question of themselves, their parents, friends, spouse … anyone who’s close enough to care.   Sometimes it’s frivolous;   sometimes it’s speculative;   and, sometimes it’s just plain, absolutely necessary.   For people with dementia – like everyone – it can be all those things and … painful, sad, and unavoidable.

Continue reading What If … ?

Eight Conditions for My Assisted Death

By Ron Posno, October 10, 2018

A wonderful documentary called The Eight Conditions, which was produced by Alisa Siegel of CBC Radio, aired on Michael Enright’s show, The Sunday Edition, on September 30, 2018. The documentary, which you can listen to here, is based on my personal quest for an assisted death when I am no longer capable of making such decisions for myself. You can also find a link to the documentary and other relevant information on Dying With Dignity Canada’s website.

Continue reading Eight Conditions for My Assisted Death